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[ Recorded presentation ] Recorded presentation

Community Partnership Building in Preparation for the National Children's Study (NCS): A Perspective from the BYPL Vanguard Site

Nancy Fahrenwald, PhD, RN, South Dakota State University, College of Nursing, Brookings, SD 57007, 605-688-4098, Nancy.Fahrenwald@sdstate.edu, Diane E. Kayongo-Male, PhD, SDSU Sociology Dept., Brookings, SD 57007, Donna J. Hess, PhD, SDSU Dept. of Rural Sociology, Brookings, SD 57007, Matthew D. Vukovich, PhD, SDSU HPER Dept., Brookings, SD 57007, and Bonny L. Specker, PhD, EA Martin Program in Human Nutrition, SDSU, Brookings, SD 57007.

The Children's Health Act of 2000 authorized the National Institute of Child Health and Human Development (NICHD) and a consortium of federal agencies to plan and conduct the National Children's Study (NCS). The study plans to examine the longitudinal effects of environmental influences on the health and development of more than 100,000 children across the United States (US), following them from before birth until age 21. Environment is broadly defined to include: natural and man-made environments, biological, chemical, physical and social factors, behavior, genetics, culture, family and geographic location. The NCS will form the basis of future child health guidance, interventions and policy. Seven (of potentially eight) Vanguard Centers and an overall Coordinating Center have been named. Pending funding from Congress, additional sites will be added after pilot testing and protocol development. The Vanguard Centers were randomly selected from 105 probability sampled NCS locations across the nation. Probability sampling was done to assure geographic and demographic diversity that best represents all US children. A study of this magnitude requires considerable time and effort in engaging and building trust with the communities where sampling segments are located. The BYPL Vanguard Site, lead by South Dakota State University, includes four predominantly rural adjoining counties, one in South Dakota and three in Minnesota. This presentation will describe the efforts to identify and engage diverse BYPL community stakeholders and members using a community based research (CBR) approach. Communities within the BYPL site will be defined and efforts to ensure representation of these communities will be described. CBR brings community members into the study as partners. Knowledge of the community is used to understand and discover health concerns and to identify additional research questions and community health priorities. Collaboration with stakeholders in conducting a BYPL community needs assessment will be outlined. The composition of a community advisory council which is involved in decisions about community assessment data needs, interpretation of the data and determination of priority community health issues will also be presented.

Learning Objectives:

Keywords: Community-Based Partnership, Maternal and Child Health

Related Web page: nationalchildrensstudy.gov/

Presenting author's disclosure statement:

Any relevant financial relationships? No

[ Recorded presentation ] Recorded presentation

Community Partnerships

The 134th Annual Meeting & Exposition (November 4-8, 2006) of APHA