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Abstract #160949

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Robin Gaines Lanzi, PhD, MPH¹, Kathleen M. Baggett, PhD², Jennifer Burke Lefever, PhD³, Kristi Carter Guest, PhD⁴, Cathy Guttentag, PhD⁵, Elizabeth Lerner, ATR-BC, LPC¹, Jeanne Mattei, MSW, LSW³, Christine Willard-Noria, PhD³, and Centers for the Prevention of Child Neglect⁶. (1) Center on Health and Education, School of Nursing and Health Studies, Georgetown University, Box 571107, 3700 Reservoir Rd NW, Washington DC, DC 20057, 202-687-3246, el78@georgetown.edu, (2) Juniper Gardens Children's Project, University of Kansas, 650 Minnesota Avenue, 2nd Floor, Kansas City, MO 64110, (3) Department of Psychology, University of Notre Dame, 118 Haggar Hall, South Bend, IN 46556, (4) Civitan International Research Center, University of Alabama at Birmingham, 1719 Sixth Avenue South, Birmingham, AL 35294, (5) Pediatrics, University of Texas Health Center at Houston Medical School, University of Texas Houston, 7000 Fannin, Suite 2300, Houston, TX 77030, (6) School of Nursing and Health Studies, Georgetown University, Box 571107, 3700 Reservoir Rd NW, Washington DC, DC 20057

The proposed presentation will focus on the ethical issues associated with conducting descriptive and preventive intervention research with low-income mothers and their babies. This work is based on the Centers for the Prevention of Child Neglect, a consortium of universities and multi-disciplinary researchers and practitioners who collaborate in conducting multi-site research to improve understanding of the precursors of child neglect and to develop and test evidence-based prevention programs. As a research study, we ensure the protection of human subjects and the voluntary nature of participation, while adhering to the study protocol requirements to deliver the program in a scientifically sound manner. Families, regardless of whether they are participating in a descriptive study or a preventive intervention study, have maternal, child, and family needs, including transient housing and childcare arrangements, inadequate access to healthcare, financial stress, legal and immigration issues, and mental health issues such as untreated depression and domestic conflict or violence. In this presentation, we will discuss the comprehensive, systematic mechanism we developed to address the on-going, yet frequently changing clinical needs of the participants in an ethically responsive way (e.g., Principles of Scientific Integrity, Ramey and Lanzi, 2005; Home Visiting Guide, Baggett et al, 2004; and Clinical Challenges Manual, Guttentag et al, 2004). The presentation will include approaches for integrating proven strategies and best practices for addressing ethical, clinical, and research challenges. Practical, programmatic, and policy recommendations for addressing ethical issues in research will be discussed.

Learning Objectives:

• Describing approaches for integrating proven strategies and best practices for addressing ethical, clinical, and research issues; discussing cultural, academic, and policy issues affecting implementation; listing practical, programmatic, and policy recommendations.

Keywords: Research Ethics, Public Health Research

Related Web page: cpcn.nd.edu

Presenting author's disclosure statement:

Any relevant financial relationships? No
Any institutionally-contracted trials related to this submission?

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

• Slides (pdf) or Handout