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Abstract #167086
Lisa M. Martin, MA, Department of Cardiac Surgery Research, Inova Heart & Vascular Institute, 3300 Gallows Road, Suite B-109, Falls Church, VA 22042, 703.776.7071, lisa.martin@inova.org
The purpose of this institute is to present the mechanisms needed to design and implement a successful longitudinal health survey research study that uniquely combines health-related quality of life (HRQL) data with ongoing clinical data. Based on our experiences with our longitudinal HRQL cardiac surgery patients, we will address the challenges this type of study pose and ways to overcome them. HRQL data, in general, is captured at a few time points – ideally one before an intervention and then at some point(s) post intervention. Much of the HRQL literature is reported from studies that were not prospectively designed and is merely a retrospective analysis; even if prospectively designed it is often flawed. Frequently the data collection time points are loosely defined and the other data collected, to be used to make associations with the HRQL data, is lacking. We will outline the key elements in prospectively designing health survey studies that enable you to evaluate appropriate outcomes. We will also address the personnel and space requirements that are needed initially as well as the challenges faced with program growth. Presently, our research team includes: a medical director, a research administrator, a clinical research administrator, a database administrator, and a biostatistician. As our program grows, we are finding a need for more personnel.
Learning Objectives:
- Upon completion of this course, the participant will be able to list and discuss the essential elements involved in designing and implementing an intensive longitudinal study that combines clinical and health survey data.
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- Upon completion of this course, the participant will be able to discuss the challenges and limitations in data collection and management of a longitudinal study that combines clinical and health survey data.
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- Upon completion of this course, the participant will demonstrate an understanding of the processes necessary to develop and implement a survey based longitudinal study.
Presenting author's disclosure statement:
Any relevant financial relationships? No
Any institutionally-contracted trials related to this submission?I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.
An Introduction to the Development and Implementation of a Longitudinal Health Survey: The ABCs The 135th APHA Annual Meeting & Exposition (November 3-7, 2007) of APHA
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