245432 Legislative goals for chronic obstructive pulmonary disease (COPD): Policy issues and a call to action

Wednesday, November 2, 2011: 11:30 AM

Miriam O'Day , Senior Director Public Policy, COPD Foundation, Washington, DC
The COPD community has experienced success on a number of policy initiatives, however significant challenges remain as fully half the individuals with COPD are undiagnosed and therefore untreated. COPD needs to gain greater recognition by policymakers to expand the Federal and State involvement. In response, the COPD Foundation and US COPD Coalition have developed draft legislation for the 112th Congress. The legislation specifically fills gaps in the federal response and does not duplicate efforts or policies that have been prioritized by Coalition members. The presenter will discuss federal legislative goals and the role of State Coalitions, advocates and the public health sector. The Coalitions draft legislation increases coordination across multiple federal agencies, such as CDC, NIH, FDA, the VA and CMS. More resources are needed—research, prevention, public health interventions, clinical services and community programs—to lessen the incidence and impact of this disease.

The legislation establishes a national action plan to address COPD. The plan is to be developed by CDC in coordination with ten other federal agencies with input from patients, caregivers, health professionals, researchers and patient advocacy groups. The intent of this session is to stimulate more effort from the public health community to increase synergies. The Coalition has a call to action to broaden national prevention activities for COPD including better public education and improved public health interventions that stimulate earlier diagnosis and improve patient. Better outreach is also needed to populations and individuals at-risk for COPD from tobacco and non-tobacco causes: environmental, occupational, biological and genetic causes.

Learning Areas:
Advocacy for health and health education
Chronic disease management and prevention
Planning of health education strategies, interventions, and programs
Public health or related laws, regulations, standards, or guidelines
Public health or related public policy

Learning Objectives:
1. Identify Legislative issues that affect COPD. 2. Define the potential impact of a federal coordinated comprehensive public health response to COPD. 3. Explain the gaps in Federal COPD programs and awareness. Define how the public health community can coordinate activities with the COPD advocacy community.

Keywords: Policy/Policy Development, Chronic Diseases

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am qualified to present as Senior Director Public Policy for the COPD Foundation where I manage Federal government affairs, including legislative and regulatory activities. I work closely with membership organizations and coalitions including collaboration with the US COPD Coalition and members of the COPD Community. I Chair the Policy Committee for the US COPD Coalition; working closely with the COPD Congressional Caucus. Since 2006, I have been responsible for Federal Legislative Affairs for the American Association for Respiratory Care (AARC). On behalf of AARC, I am working to pass legislation that will improve patient access to respiratory therapists. I also provide public policy consulting for the Alpha-1 Foundation and the Alpha-1 Association. Prior to launching my own consulting practice, I was the Vice President of a national patient organization engaged in consumer advocacy and blood product safety.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.