5111.0: Wednesday, October 24, 2001 - 12:30 PM

Abstract #23246

Consumers' participation in nursing home decision making -- Preferences and perceptions

Nancy A. Miller, PhD, Policy Sciences Graduate Program, University of Maryland, Baltimore County, Administration Building, Room 622, 1000 Hilltop Circle, Baltimore, MD 21250, 410-455-3889, nanmille@umbc.edu, Marcie Weinstein, MBA, OTR/L, Towson University, Towson, MD, and Bonnie Davies Yeiser, MA, Policy Sciences Department, University of Maryland Baltimore County, 1000 Hilltop Circle, Baltimore, MD 21250.

Objective. The purpose of this study is to explore the nursing home admission decision making process with working age individuals newly admitted to a nursing home. Methods. Eighteen nursing homes, varying in size and organizational form, are participating in the study. These nursing homes are located in two urban and two rural counties in Maryland. Within these nursing homes, 200 working age individuals who have been admitted to the nursing home within 30 days are receiving an inperson, semistructured interview regarding their values, participation in decision making, and preferences for participation. A key family member/friend and medical provider are being interviewed by phone, if identified by the nursing home participant as a primary decision maker in the admission decision. Bivariate and multivariate analyses are being conducted. These analyses examine five questions: 1) the level of consumer participation in the admission decision; 2) the perceived adequacy of that participation; 3) consumer preferences for continued nursing home care relative to alternative sites for long term care; 4) concordance between consumer, family member/friend and medical provider regarding level of, and adequacy of participation; and 5) factors related to continued nursing home placement relative to discharge. Findings. Preliminary descriptive findings on study participants and bivariate analyses of various aspects of participation in decision making will be presented. Significance. Findings will enhance our understanding of the nursing home admission process and experience of working age individuals with disabilties, filling a critical research gap.

Learning Objectives: 1. To understand the degree to which younger people admitted to a nursing home participated in the decision. 2. To learn about long term care values important to working age individuals newly admitted to a nursing home.

Keywords: Patient Perspective, Long-Term Care

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: None
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

The 129th Annual Meeting of APHA