4261.0: Tuesday, October 23, 2001 - 4:30 PM

Abstract #25747

A Uniform Data Set for Minority and Multilingual, Community-Based Health Access Projects: Results of Formative Research and Pilot Test

Mark C. Edberg, PhD1, Frank Y. Wong, PhD1, Alan M. Bekelman, MS1, Violet Woo, MS, MPH2, and Valerie Welsh2. (1) Development Services Group, Inc., 7315 Wisconsin Avenue, Suite 700E, Bethesda, MD 20814, (301) 951-0056, medberg@dsgonline.com, (2) Office of Minority Health (DHHS), 5515 Security Lane, 10th Floor, Rockville, MD 20854

The Office of Minority Health (OMH) has contracted with Development Services Group, Inc. to develop a uniform data set (UDS) for use across all of OMH’s grant and standard cooperative agreement programs. The UDS will serve as the major reporting system for process and outcome data, accommodating a variety of projects targeting diverse racial and ethnic populations. This broad-based data set was developed with assistance from an advisory group of Federal and private agency representatives, and through formative research that included focus groups, interviews, site visits, and a pilot test among a sample of grantees. A core and module data set was developed that includes two basic elements: a core set of general descriptive data about each project; and individual data modules for 18 “activity categories.” Grantees fill out data for only those activity categories that correspond to what they are actually doing. Additional categories, such as “crisis management,” have also been included to ensure that other activities which are critical bridges to project success can be reported. Such activities may not be part of project plans but become necessary to address problems or community issues that would otherwise serve as a barrier to success. Moreover, the data set also includes some quasi-qualitative reporting of impact, in order to capture some types of impacts that may not be reflected in the quantitative data. This project has important methodological implications with respect to assessing the impact of such community-based programs. Results from the pilot study will be presented.

Learning Objectives: 1. Participants will learn about a uniform data set for repoprting process and outcome that is applicable to community-based, minority health access programs. 2. Participants will obtain information about the data set that can help them use or adapt it for their own health access programs.

Keywords: Access to Health Care, Data Collection

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: None
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

The 129th Annual Meeting of APHA