During the past decade, the field of medical genetics has witnessed significant advances in mapping and sequencing the human genome. This has provided an increased understanding of common conditions such as diabetes, most cancers, diseases of the heart, mental illnesses, and some personality traits. These advances, fueled largely by the Human Genome Project have brought genetic issues to the forefront of health care and created an increased need for genetic services. Georgetown University and the Genetic Alliance are providing genetics education, resources and technical assistance to members of six health professions through their professional organizations. To assure meaningful education, a national survey of 3600 members was carried out in 1998. This showed that more than 70% of health professionals were providing genetic services to at least a few clients. Orientation sessions were carried out for the national boards and executive staff of the collaborating organizations. To reach practitioners, training workshops of 3 to 8 hours have been held at more than 50 national and regional conferences. To educate faculty, intensive five-day courses were held at Georgetown University. All education models have included basic genetics and the new genetics, relevance of genetics to each profession, views of consumers, and interactive discussions of the ethical, legal and social implications of the Human Genome Project. Materials developed for training include a video and manual, Case Histories with questions for discussion, Fact Sheets, Resource lists, and a web site. Publications of HuGEM have been quoted widely and used in policy decisions. See www.gucdc.georgetown.edu/hugem
Learning Objectives: 1. Identify key concepts of the Human Genome Project 2. Recognize challenges of genetic information and research 3. Apply concepts to education model
Keywords: Health Education, Ethics
Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: Georgetown University Medical Center and the Genetic Alliance
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.