The California Health Interview Survey (CHIS) collects a wide range of information from respondents, including some information that may directly or indirectly be associated with the identities of individual respondents. While IRBs require that the identities of study participants (or survey respondents) remain confidential, they are less specific on how identities should be protected. The CHIS policies were developed with the view that confidentiality assurance is necessary to fulfill IRB obligations, and that it is also desirable for gaining trust from survey respondents and increasing the public’s confidence in the results. Our experience further indicates that assurance of confidentiality is needed at almost every stage of a survey project, from collecting the data to reporting the results. In CHIS, we have implemented confidentiality assurance in the following phases or sites: contacting respondents, data collection site, CHIS home site, study collaborator sites, public-use data files, CHIS data access center, and web dissemination of survey results.
Learning Objectives: The California Health Interview Survey (CHIS) is a large population-based assessment of health and health care access designed to provide estimates at the local level and for California's ethnically diverse population. This session will provide information on the use of CHIS data to measure health disparities based on race/ethnicity, income, age, gender and sexual orientation, immigration status and citizenship, and geography, including urban-rural place of residence. Presenters will describe scientific and political factors involved in the development of CHIS; the design of the 55,000 household CHIS sample; methods of assuring quality of health, health insurance, access, and other measures; methods of multicultural and linguistic adaptation of survey measures; confidentiality protection policies; and the dissemination of data and results to diverse users.
Keywords: Data Collection, Population
Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: None
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.