The 130th Annual Meeting of APHA

Abstract #33912

Bonnie J. Chakravorty, PhD, MSW, CHES, Program in Community Health, Tufts University, 112 Packard Ave., Medford, MA 02155, 617-627-5445, bonnie.chakravorty@tufts.edu and Robert A. Sandhaus, MD, PhD, FCCP, Alpha One Foundation, 2937 SW 27 Avenue, Suite 302, Miami, FL 33133.

Alpha1-Antitrypsin Deficiency (AAT) is the most prevalent potentially life threatening hereditary disorder of Caucasians in America. Frequently misdiagnosed or undetected AAT can lead to early onset emphysema in younger adults and liver disease in children and adults. The disabilities of persons with AAT (hereafter referred to as “Alphas”) are often not apparent to observers. AlphaNet, a non-profit health management company established “By Alphas to Serve Alphas,” has developed a comprehensive program to enhance the quality of Alphas’ lives. In this paper we focus on the sexuality component of this program and discuss the importance of addressing sexuality issues in AAT and how the AlphaNet self-management program does this.

Learning Objectives: After listening to this presentation listeners will be able to

• basically describe the etiology, epidemiology, symptoms, detection and treatment of AAT-related pulmonary disease
• identify at least five ways in which AAT can impact sexuality and sexual performance
• discuss at least five strategies Alphas and others with obstructive pulmonary disorders can use to enhance sexuality

Keywords: Chronic Diseases, Sexuality

Related Web page: www.alphanet.org/main.htm

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: AlphaNet
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.