The 130th Annual Meeting of APHA

4261.0: Tuesday, November 12, 2002 - Table 9

Abstract #36415

Convergence of patient and proxy decision making: Family and provider views of patient involvement in nursing home admission decisions

Stephanie L. Jones, MPH, Policy Sciences Graduate Program, University of Maryland, Baltimore County, 1000 Hilltop Circle, Baltimore, MD 21250, 410-455-6531, jstep1@umbc.edu, Nancy A. Miller, PhD, Policy Sciences Graduate Program, UMBC, 1000 Hilltop Circle, Baltimore, MD 21250, and Marcie Weinstein, MBA, OTR/L, Department of Occupational Therapy & Occupational Science, Towson University, 8000 York Road, Towson, MD 21252.

OBJECTIVE: Determine the convergence of patient, family, and provider perceptions of patient involvement and preferences for involvement in nursing home (NH) admission decisions. METHODS: 200 working aged patients, 18-64yrs, participated in in-person interviews from 17 NHs throughout Maryland. 22 providers and 36 family members, involved in the NH decision, were interviewed. Interviews assessed healthcare values, participation levels, and preferences for participation in admission decisions. SUBJECTS: 68% of providers had experience with NH decisions among younger patients, and 72% had no provider relationship with an area NH. Many family members cared for the patient prior to NH admittance, and felt the patient's condition affected their physical (49%) and mental health (51%). 74% had no prior experience caring for someone in the patient's condition. RESULTS: 76.2% of patients reported a strong desire to participate in the admission decision, while 68% of practitioners and 46% of family members felt patients strongly desired to be involved. Many patients (54%) felt they participated a lot in the NH admission decision while 55% of practitioners and 34% of family members felt patients were involved a lot. Some patients (34%) felt they were not involved at all, while 37% of family members and none of the providers felt patients were not involved. CONCLUSIONS: Family members recognize actual levels of involvement in decision-making, particularly patients' lack of involvement in the NH admission decision. However, family members consistently underestimate patients' preferences for involvement in the decision and providers more accurately perceive patients' desire to participate in decision-making.

Learning Objectives:

Keywords: Nursing Homes, Long-Term Care

Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

Communicating about Health Issues with Older Adults

The 130th Annual Meeting of APHA