The 130th Annual Meeting of APHA

Abstract #39163

Linda Burhansstipanov, MPH, DrPH, Executive Director, Native American Cancer Research (NACR), 3022 S. Nova Rd, Pine, CO 80470, Linda U. Krebs, School of Nursing, Campus Box F541, P.O. Box 6508, Aurora, CO 80045, Alice Bradley, MA, Partnership Program, Cancer Information Service - Rocky Mountain Region, 3204 North Academy, Suite 100, Colorado Springs, CO 80917, and Eduard Gamito, UCHSC, 4200 E. 9th Ave., Campus Box C315, Denver, CO 80262, 303/512-0988, natamlb@aol.com.

Using the "Clinical Trials Education for Colorado Providers" curriculum as a foundation, a Native American module was developed. The complete module includes twelve objectives. Selected objectives within the module have been pretested within intertribal communities and subsequently refined. The module is designed to be implemented within Native American conferences or meetings. The CTECP curriculum provided a solid base from which the culturally relevant community-based modules could evolve. The modules have been pretested with diverse tribal communities of which most participants were either cancer survivors or first degree relatives of cancer survivors. The modules will be available from the NACR web page late spring 2002. Natives said they understood the need and purpose for clinical trials and 25% had sought additional information about their participation in clinical trials following the pretesting of selected module objectives.

Learning Objectives:

• The purpose of this presentation is to share lessons we have learned while developing, evaluating, and refining the "Clinical Trials Education for Native Americans" curriculum. Of the Native American cancer patients enrolled within the National Native American Cancer Survivors Support Network, less than 5% received any information about clinical trials. Currently Native Americans who do not have insurance are not receiving quality cancer care. Through participation in selected clinical trials, Native patients may attain standard cancer care.

Keywords: American Indians, Clinical Trails

Related Web page: members.aol.com/natamcan

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: Native American Cancer Research (NACR), Corp.
I have a significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.
Relationship: Co-Investigator on Active Grants