The 130th Annual Meeting of APHA

4127.0: Tuesday, November 12, 2002 - 12:45 PM

Abstract #45662

Long term care values -- What's important to working age consumer, their family and medical provider

Nancy A. Miller, PhD, Policy Sciences Graduate Program, UMBC, 1000 Hilltop Circle, Baltimore, MD 21250, 410-455-3201, nanmille@umbc.edu, Marcie Weinstein, MBA, OTR/L, Department of Occupational Therapy & Occupational Science, Towson University, 8000 York Road, Towson, MD 21252, and Stephanie L. Jones, MPH, Policy Sciences Graduate Program, University of Maryland, Baltimore County, 1000 Hilltop Circle, Baltimore, MD 21250.

Objectives: We examine long term care values of working age individuals who have recently been admitted to a nursing home. We compare these values to those of the primary family member/friend and medical provider involved in the decision. Methods: Semi-structured in-person interviews were conducted with 200 consumers in 12 nursing homes. Written interviews were completed by the primary family member/friend and medical provider identified by the consumer. Participants evaluated the importance of 12 long term care values on a 4-point Likert scale. Participants also rank ordered their top three values. Results: Involving family and friends in their care, having something in their future to look forward to, maintaining independence and having access to medical care were identified as the most important values, in descending order. Involving family and friends in their care was ranked as the most important by 21.2 percent of the sample, while 13.3 percent ranked access to medical care as the most important. In contrast, family members/friends and medical providers were quite homogenous. The majority ranked access to medical care as the most imoprtant value in making long term care decisions. Few family members/friends and providers included consumers' most imoprtant values in their rankings. Conclusions: Both the heterogeneity in consumers' long term care values, and the differences across consumers, family and medical providers point to a need to incorporate consumers and their values in long term care decisions.

Learning Objectives:

Keywords: Long-Term Care, Disability Studies

Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

Consumer-directed Care

The 130th Annual Meeting of APHA