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The 130th Annual Meeting of APHA |
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The 130th Annual Meeting of APHA |
Daniel Karus, MS1, Victoria H. Raveis, PhD1, Katherine Marconi, PhD2, Peter A. Selwyn, MD, MPH3, Barbara Hanna, MD4, and Margaret Perrone, RN5. (1) Joseph L. Mailman School of Public Health, Columbia University, Center for Psychosocial Study of Health and Illness, 100 Haven Avenue, Suite 6A, New York, NY 10032, 212-304-5557, dk307@columbia.edu, (2) Office of Science and Epidemiology, HIV/AIDS Bureau, Health Resources and Services Administration, Parklawn Bldg., 5600 Fishers Lane, Rockville, MD 20857, (3) Department of Family Medicine, Montefiore Medical Center, 3544 Jerome Ave, Bronx, NY 10467, (4) AIDS Services Center, Inc., 608 Martin Luther King Drive, Anniston, AL 36202, (5) University of Maryland, Baltimore, 29 S. Greene Street, Suite 300, Baltimore, MD 21201
Persons with HIV/AIDS from medically underserved populations constitute a growing population requiring palliative care. Unfortunately there are few data regarding these individuals. Data presented are from three projects funded by a HIV/AIDS Bureau, Health Resources and Services Administration initiative to provide appropriate palliative services to individuals with HIV/AIDS who have difficulty accessing the health care system, either due to a lack of services in their communities or because they are hard-to-reach. All three projects are collecting a common set of data elements. Clients provide information regarding: service needs/utilization, quality of palliative care (POS), quality of life (MVQOL 15), psychological functioning (MHI-5), physical functioning (RDRS-2), and symptomatology (MSAS--Revised). A staff member completes a service needs/utilization form and analogous versions of the POS and RDRS-2. Location, institutional setting, and service model vary markedly across projects. Significant differences also exist between projects with regard to client sociodemographics, (race/ethnicity and gender) and medical histories (CD4+ counts, substance abuse, survival time and location of death), service needs/utilization, and physical functioning. Although no significant differences were found for summary measures of quality of care, QOL, psychological functioning and symptoms; interesting differences were noted with regard to individual subscales and/or items.
Learning Objectives:
Keywords: HIV/AIDS, End-of-Life Care
Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.