The 130th Annual Meeting of APHA

Abstract #48881

Helen Meador, PhD¹, Philip Zazove, MD², Daniel Gorenflo, PhD¹, Edward Saunders, PhD¹, and Holly Derry, MPH¹. (1) School of Medicine, University of Michigan, 1018 Fuller Rd., Ann Arbor, MI 48109, 734-998-7120, hemeador@umich.edu, (2) School of Medicine, University of Michigan, 7300 Dexter Ann ARbor Road, Dexter, MI 48130

Objective/Methods: To use our experiences conducting a NIH funded study to provide cancer prevention informtion to Deaf and Hard of Hearing (D&HH) persons to highlight crucial factors that need to be addressed when working with this population. Data collection involves a survey on computer use, a pretest and several post-tests as well observing the real benefits of adding an American Sign Language (ASL) interpreter to the screen. This presentation will focus on the impact of unique Deaf Community attitudes and beliefs on the ability to gather information. Results: Multiple expression of Deaf Culture mores resulted in difficulties obtaining participation of individuals in this minority population. Although the researchers are well-accepted and there were multiple accolades regarding the ASL interpreter, the Deaf community exhibited mistrust toward the reasons for the research. There were significant issues relating to open communication and confidentiality as well, such as D&HH persons both watching and assisting participants who were answering personal questions. In addition, we found evidence for discomfort with using computers as well as misunderstanding of the basic research principles, such as Deaf community members not comprehending the concept of keeping all data in strictest confidence; some thought this meant that they were suspected of being involved in criminal activity. Conclusions: Researcheers conducting health care research on the Deaf Community need to take into consideration the distinct beliefs and attitudes of Deaf individuals if they wish to be successful in obtaining useful data. Specific solutions we have developed will be shared with the audience.

Learning Objectives: At the conclusion of this presentation, the participant will be able to

• List five characteristics of Deaf culture
• Recognize the potential problems of ignoring Deaf cultural mores
• Apply knowledge of Deaf cultural mores to future work with Deaf people

Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.