The 131st Annual Meeting (November 15-19, 2003) of APHA

The 131st Annual Meeting (November 15-19, 2003) of APHA

3115.0: Monday, November 17, 2003 - 11:45 AM

Abstract #70190

Measuring the Effects of Personal Assistance Services for People with Disabilities on Their Participation in Major Life Activities

Kerri Morgan, MS OTR/L, Holly Hollingsworth, PhD, and David B. Gray, PhD. Program in Occupational Therapy, Washington University, Campus Box 8505, 4444 Forest Park Ave, St. Louis, MO 63108-2292, 314-286-1659, morgank@msnotes.wustl.edu

Services provided by Independent Living Centers (ILC) have not been clearly related to their effects on the quality of participation of the recipients. A focus of one study under the RRTC on Full Participation in Independent Living involves developing a measurement system to assess changes in participation before and after service provision of personal assistance services. A repeated measures group design is being used to assess pre- post-test differences in participation by eighty people with disabilities who receive personal assistance services from an ILC. The Participation Survey (PARTS/M), the Facilitators and Barriers Survey (FABS/M) and the CDC-Core are being used to assess participation, environment, and personal factors respectively. The presenters will describe participation characteristics including time taken to prepare for several major life activities, evaluative reports, assistance used, and attribution for limited participation as person or environment based. In addition, duration, type, satisfaction, choice and importance of personal assistance will be presented. A participatory action research approach is used for this study. Participant survey responses may provide feedback on the service providers in the strengths and weakness of the personal assistance services in changing the participation in activities they deem to be of importance. In addition, the survey responses may give the service providers valuable information on the consumer’s choice and satisfaction in participating in activities not directly measured by the standard protocols used in the narrow band of factors considered of importance in evaluation of service delivery programs (hours of personal assistance received).

Learning Objectives:

Keywords: Disability, Assessments

Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

Disability Measurement and Classification

The 131st Annual Meeting (November 15-19, 2003) of APHA