The 131st Annual Meeting (November 15-19, 2003) of APHA

The 131st Annual Meeting (November 15-19, 2003) of APHA

5048.0: Wednesday, November 19, 2003 - Board 1

Abstract #74536

Characteristics of State Newborn Screening Programs

Emily Gamble Gardiner, MPA1, Janina Austin, MBA1, Helene Toiv, MPA1, Ann Tynan, MPH1, and Kevin Milne, JD, LLM2. (1) Health Care Group, U.S. General Accounting Office, 441 G St., NW, Washington, DC 20548, (202) 512-4469,, (2) Office of General Council, U.S. General Accounting Office, 441 G Street, NW, Room 7U15, Washington, DC 20548

Each year newborn screening programs in all the states test 4 million newborns to identify those who may have genetic and metabolic disorders that could threaten their life or long-term health. Early detection, diagnosis, and treatment of these disorders may prevent a childís death, serious illness, or disability. In this session, the U.S. General Accounting Office will discuss findings from our survey of newborn screening programs in all 50 states and the District of Columbia. The survey collected information on the laboratory and program administration/follow-up components of statesí newborn screening programs for genetic and metabolic disorders. We will discuss (1) the disorders tested for in each state, (2) how disorders are selected, (3) information communicated to parents and health care providers about newborn screening, (4) how states notify parents and providers of screening results and follow up on abnormal results, (5) state newborn screening programsí expenditures and funding sources, and (6) efforts by the Department of Health and Human Services and states to monitor and evaluate the quality of state newborn screening programs.

Learning Objectives:

Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

Infant and Child Health Poster Session (Joint-sponsored by Oral Health Section)

The 131st Annual Meeting (November 15-19, 2003) of APHA