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[ Recorded presentation ] Recorded presentation

Assessment of State Laws, Regulations, and Practices Affecting the Collection and Reporting of Racial and Ethnic Data by Health Insurers and Managed Care Plans

Steve Hitov, JD1, Doreena Wong, JD1, and Violet Ryo-Hwa Woo, MS, MPH2. (1) National Health Law Program, Inc., 1101 14th Street, N.W., Suite #405, Washington, DC 20005, 202-289-7661, hitov@healthlaw.org, (2) Office of Minority Health/OPHS, U.S. Department of Health and Human Services/OS, 1101 Wootton Parkway, Suite 600, Rockville, MD 20852

Racial and ethnic minorities suffer impeded access to health services and poorer quality of care, are less likely to have health insurance, and have worse outcomes compared to Whites. Racial and ethnic data are not routinely collected by many health service delivery systems or insurers, due in part to confusion about whether laws and regulations prohibit or allow such data collection. Lack of data is a barrier to performance measurement and clinical quality improvement efforts.

The Office of Minority Health has contracted the National Health Law Program, Inc. to review state policies and practices concerning the collection of r/e data by health insurers and managed care plans. Phase I involved analyzing statutes and policies of the 50 states and the District of Columbia via computerized legal research systems, Web sites and public record requests. Four states—CA, MD, NH and NJ—have some prohibitions against health insurers and/or HMOs collecting r/e data. No policy was found requiring the collection. Texas requires the collection of primary language data.

Phase II involves visits to selected jurisdictions to interview state Departments, private insurance, and managed care organizations regarding their understanding of the state’s policies as they relate to collecting r/e data. Practice and/or policy to collect r/e data or request justification for collecting such data was found.

An understanding of state provisions regarding the collection and reporting of r/e data is needed to accurately measure the health status of and quality of services for underserved populations and to address r/e health disparities.

Learning Objectives:

  • At the conclusion of the session, the participant (learner) in this session will be able to understand and prioritize

    Keywords: Quality Improvement, Health Disparities

    Related Web page: www.omhrc.gov/omh/sidebar/datastats13.htm

    Presenting author's disclosure statement:
    Organization/institution whose products or services will be discussed: National Health Law Program, Inc. and Office of Minority Health/U.S. Department of Health and Human Services/OS/OPHS
    I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.

    [ Recorded presentation ] Recorded presentation

    Public Health Data and Privacy

    The 132nd Annual Meeting (November 6-10, 2004) of APHA