Recorded presentation

Kymberly Cravatt, MPH, CHES, Director/Cancer Programs, Cherokee Nation, 1200 West 4th Street, Tahlequah, OK 74464, Ruth Hummingbird, BBA, Project Coordinator/Comprehensive Cancer Control, Cherokee Nation Health Services/Cancer Programs, 1200 West 4th Street, Tahlequah, OK 74464, 918-458-4491, ruth-hummingbird@cherokee.org, and Gloria A. Grim, MD, Medical Director/Health Services, Cherokee Nation, PO Box 948, Tahlequah, OK 74464.

In September 1997 Cherokee Nation Cancer Registry (CNCR) received funding from the National Cancer Institute (NCI) to develop a cancer registry. The target population for the registry includes all American Indians (AI) residing in the fourteen-county Cherokee Nation Tribal Jurisdictional Service Area (TJSA) in Northeastern Oklahoma. The ultimate goal of this project has been to establish a population-based cancer registry for the Cherokee Nation, which will meet the standards of the NCI’s Surveillance, Epidemiology and End Results (SEER) Program for case finding, patient follow-up, data processing, data reporting, and quality assurance. National statistics have shown slightly lower cancer incidence in American Indian populations, although the five-year survival rate is very poor due to diagnosis in advanced stages of cancer. Collaborative partners have included Oklahoma Central Cancer Registry, Oklahoma State Health Department, private hospitals utilized by tribal members, and the New Mexico SEER based Tumor Registry. Methods include identification of cancer cases, missed cancer cases within the TJSA, and identification of racial misclassification. The registry currently has 2,533 cases in their database and cases diagnosed between 1997 and 2001 are complete. These five full years of data have been beneficial in calculating the incidence, mortality, survival, and prevalence of cancer in the TJSA. This data is also being shared with the CDC funded Cherokee Nation Comprehensive Cancer Control Project to assess the cancer burden and help in development of prevention and control programs for the Cherokee Nation. Partners will begin long-range planning to focus on early prevention, intervention, and ongoing support.

Learning Objectives: “At the end of this session the participant (learner) will be able to

• List five processes that are used in running a cancer registry.”
• Identify potential problems related to racial misclassification.”
• Describe how cancer registry data can be used to support other cancer program objectives.”

Keywords: Cancer, Registry

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: Cherokee Nation Cancer Registry/Comprehensive Cancer Control Program
I have a significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.
Relationship: This project has been funded in whole or in part by the Centers for Disease Control and Prevention with Grant/Cooperative Agreement Number U55/CCU621919. Its contents are solely the responsibility of the authors and do not necessarily represent the offic

Recorded presentation