Recorded presentation

Joseph Canose, MLS, Christopher and Dana Reeve Paralysis Resource Center, Christopher Reeve Paralysis Foundation, 636 Morris Turnpike, Suite 3A, Short Hills, NJ 07078, 973-467-8270, jcanose@crpf.org

Paralysis resulting from diseases, injuries or birth defects is a major cause of disability that limits daily activities for thousands of people in the U.S. All forms of paralysis have a negative effect on the quality of life of the individuals living with paralysis as well as family members and caregivers. Overcoming environmental barriers to community services and the substantial costs associated with basic care, treating secondary conditions, and acquiring assistive technology make it difficult for individuals with paralysis to maintain their health, independence, and quality of life. The primary focus of the Christopher and Dana Reeve Paralysis Resource Center (PRC) is to improve the health, quality of life and community involvement for individuals living with paralysis by providing a comprehensive, national source of information. The PRC’s information specialists respond with personalized information to inquiries received through our call center and email systems. Self-help guidance is provided to individuals through the PRC’s website, lending library and our new 310 page Paralysis Resource Guide. The PRC is developing educational materials through partnerships with organizations such as the National Center on Physical Activity and Disability and the School of Medicine at the University of New Mexico. The PRC also promotes healthy living and improved accessibility through Quality of Life Health Promotion grants awarded to non-profit community-based organizations providing services. Attendees at this session will be exposed to the demographic profile of the paralysis community accessing PRC services including a description of outreach services used to reach national, worldwide, and minority paralysis populations.

Learning Objectives: At the conclusion of this session, participants will be able to

• Discuss the national resource center model for paralysis and adopt some of its features.
• Refer clients appropriately to the Christopher and Dana Reeve Paralysis Resource Center

Keywords: Patient Education, Disability

Related Web page: www.paralysis.org

Presenting author's disclosure statement:
I have a significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.
Relationship: I am employed by the Christopher Reeve Paralysis Foundation as the Director of the Christopher and Dana Reeve Paralysis Resource Center

Recorded presentation