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American Public Health Association
133rd Annual Meeting & Exposition
December 10-14, 2005
Philadelphia, PA
APHA 2005
 
3072.5: Monday, December 12, 2005 - Board 7

Abstract #116825

Challenges in care of perinatally infected HIV-positive children and adolescents

Mari P. Millery, PhD1, Monique Centrone, MA1, Emily A. Nishi, MPA1, Nancy Van Devanter, DrPH2, Sarai Padilla, PsyD3, and Seydi Vazquez, RN4. (1) Center for Applied Public Health, Mailman School of Public Health, Columbia University, 722 W. 168th Street, New York, NY 10032, 212-305-6821, mm994@columbia.edu, (2) Columbia University, 600 West 168th Street, New York, NY 10031, (3) Center for Comprehensive Care, St Luke's-Roosevelt Hospital Center, 1000 Tenth Avenue, New York, NY 10001, (4) Women and Children Care Center, New York-Presbyterian Medical Center, 620 W 168th Street, New York, NY 10032

BACKGROUND: While the rate of perinatal HIV-infection has been minimized in the U.S. and HIV is becoming a manageable chronic illness, perinatally HIV-infected children in the U.S. are aging into adolescence. The Partnership for Family Health (PFFH), a RWCA Title IV-funded consortium that services over 2,000 HIV-infected and affected women, children, youth, and family members in northern Manhattan in New York City, provides care to 331 perinatally infected children and youth.

METHODS: The PFFH maintains a centralized database of client characteristics and services. Quantitative data will be presented for the perinatally infected group, which in 2002 included 14 infants, 264 children age 2-12, and 53 adolescents age 13-25. Qualitative descriptions and examples will be presented of specific issues, challenges, and interventions identified by the program staff.

RESULTS: Of the perinatal group, 53% are female, 53% are Black, and 40% Hispanic. They are economically disadvantaged - 95% have public insurance and 2% are uninsured. The older adolescents have particularly unstable disease status, indicated by a significant proportion (30-45%) experiencing a drop of 20% or more in their CD-4 count within a year. This subgroup is also a high utilizer of mental health services. Other special challenges include: treatment adherence, disclosure of HIV-status, sexual behaviors, school issues, and behavioral problems. Several pregnancies are reported among the perinatal group.

CONCLUSIONS: Perinatally HIV-infected children and youth in the U.S. are a population with severe health and social needs arising from their disadvantaged socioeconomic environment and from unique challenges of managing HIV medically and psychosocially.

Learning Objectives:

Keywords: HIV/AIDS,

Presenting author's disclosure statement:

I wish to disclose that I have NO financial interests or other relationship with the manufactures of commercial products, suppliers of commercial services or commercial supporters.

HIV/AIDS: Contemporary Issues

The 133rd Annual Meeting & Exposition (December 10-14, 2005) of APHA