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APHA Scientific Session and Event Listing

Janet S. Hess, MPH, CHES, Affiliated with USF Health, University of South Florida, Independent Consultant, 4942 Willow Ridge Terrace, Valrico, FL 33594, 813-653-3279, hessj@tampabay.rr.com

With the proportion of persons living with a disability on the rise, it is increasingly important to examine ways to promote optimal health outcomes in adulthood for youth with disabilities and special health care needs (YSHCN). As such, there is considerable interest in services and supports for YSHCN that address all aspects of health and well-being, including preparing for transition from pediatric to adult health care. Despite increased recognition that health care transition is a critical aspect of successful entry to adulthood, public health policies and practice do not reflect this new level of understanding: there are currently few examples of effective, evidenced-based transition programs. This presentation describes the results of a community-based initiative that builds on existing research to formulate and test a new approach to improving transition outcomes for YSHCN. This model leverages the infrastructure and capacity of the public education system to reach a large and diverse group of YSHCN. Rather than addressing clinical aspects of transition, it is designed to equip YSHCN, including those with developmental disabilities, with critical health literacy and self-determination skills needed to become successful health care consumers. Presenters will describe the development process and final products from the model: (a) a comprehensive classroom curriculum targeted to high school students who receive special education services, and (b) printed materials targeted to families, caregivers, and providers. We will also explore whether traditional health education programs are effectively preparing young people –with and without disabilites – to manage the complexities of our current health care system.

Learning Objectives: