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[ Recorded presentation ] Recorded presentation

LGBT Health: A case study of politics and data collection

Nfn Scout, PhD, Scout, 110 Grove St., Lincoln, RI 02865, 401-263-5092, scoutout@gmail.com

The gold standard for population-based data collection is the federal surveys used to establish morbidity and mortality benchmarks for different population groups. But these surveys often do not collect data on lesbian, gay, bisexual and transgender (LGBT) behavior or identity. Despite this, researchers have used a series of smaller-scale surveys or proxy markers in larger surveys to uncover a consistent pattern of adverse health outcomes for this population group. This presentation will explore the persistent and deleterious effects of politics on the efforts to add LGBT data collection questions to the gold-standard federal surveys. A variety of information will be presented, including related political opposition occurring in the federal health arena, state success efforts at adding LGBT data collection questions, and the newest data emerging from California debunking the myth that asking if someone is LGBT constitutes a sensitive question (and therefore needs special extra expense management in the survey process). The case of the CDC's efforts to add an LGBT data collection question to their Adult Tobacco Survey will be presented to highlight the political opposition to this effort – despite the depth of sound science supporting the need for data collection on this issue. The impact of this political opposition will be discussed, and used as a platform to show how small population groups are especially vulnerable to population-based assessment of health needs.

Learning Objectives:

Keywords: Politics, Data Collection

Presenting author's disclosure statement:

Any relevant financial relationships? No

[ Recorded presentation ] Recorded presentation

Health & Human Rights: Methodologies, Monitoring, and the Politics of Data

The 134th Annual Meeting & Exposition (November 4-8, 2006) of APHA