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APHA Scientific Session and Event Listing

Linda G. Alley, PhD¹, Robert German, PhD¹, Jennifer Wike, MPH, MBA², Sherri L. Stewart, PhD¹, Lisa Richardson, MD¹, Reda Wilson, MPH, RHIT, CTR¹, Scott Van Heest¹, Vivien W. Chen, PhD³, Rosemary Cress, DrPH⁴, and Maria J. Schymura, PhD⁵. (1) National Center for Chronic Disease Prevention and Health Promotion, Division of Cancer Prevention and Control, CSB, Centers for Disease Control and Prevention (CDC), 4770 Buford Highway, Mailstop K-53, Atlanta, GA 30341, 770-488-4292, lalley@cdc.gov, (2) Division of Cancer Prevention and Control, Centers for Disease Control and Prevention, CDC Northrop Grumman Information Technology Support Contract (CITS), 4164 Monument Hill Way, #13306, Fairfax, VA 22030, (3) Director, Louisiana Tumor Registry, 4950 Essen Lane, 2/F, Baton Rouge, LA 70809, (4) Department of Health Services, Cancer Surveillance Section, California Cancer Registry, 1700 Tribute Road, Suite 100, Sacramento, CA 95815-4402, (5) Director, NY State Cancer Registry, New York State Department of Health, Corning Tower, Room 536, Albany, NY 12237-0679

Background: In response to recent Institute of Medicine recommendations, investigators from Centers for Disease Control and Prevention (CDC) and seven NPCR-funded central cancer registries conducted the first study to assess quality and completeness of stage at diagnosis and treatment data collected by NPCR registries and to determine the extent to which and factors associated with cancer patients receiving care consistent with published stage-specific treatment guidelines. Methods: Cases for this three-year retrospective observational project were derived from stratified random samples of patients with localized breast and prostate cancers and regional stage colon cancer receiving care within the geographic areas of the registries. To assess quality of care received by patients, detailed clinical data on treatment and patient, facility, and tumor characteristics were abstracted from hospital and physician office records. Study variables such as age, race/ethnicity, socioeconomic status, and health insurance were examined relative to whether and to what extent they may contribute to disparities in the receipt of stage-specific cancer treatments. To assess completeness and validity of routinely collected registry data, a subset of study variables collected in the original routine registry case abstractions was compared with the same subset of variables contained in the re-abstracted data for each study case. Results: Over 13,500 cases were abstracted. We will present findings describing the data quality analyses and patterns of cancer care for eligible cases. Conclusions: Assessment of possible factors associated with receiving guideline-consistent care, when available, may be used to improve treatment and survival of patients with the diagnoses under investigation.

Learning Objectives:

• At the conclusion of the session, the participant (learner) in this session will be able to describe the surveillance issues examined and the methodology used to study the patterns of care for the three cancers targeted for investigation.

Keywords: Data/Surveillance, Treatment Patterns

Presenting author's disclosure statement:

Not Answered