Politics of HIV/AIDS data reporting

This project explores how data both empowers and destabilizes local HIV/AIDS case management and care programs. It first analyzes which data is foregrounded and how this data shapes our conversations about HIV/AIDS prevention and care. Strict bio-cultural “indicators” including age, race/ethnicity, gender, and sexual orientation, restrict the range and nature of questions that can be asked about causes and modes of transmission in a socially stratified society. Secondly, this project explores the types of data and reporting methods required of front-line HIV/AIDS workers. Through an analysis of the reporting requirements and data collection structures at a clinic in Washington, DC, this project demonstrates how the politics of data hinder quality of care and HIV/AIDS program stability. If data relays a “truth” about HIV/AIDS and it is used as a foundation for decision making, we must regularly reevaluate what “truths” and whose “truths” are told. This research seeks to more effectively empower local HIV/AIDS programs with data so that they can ultimately provide the stable, quality care that all clients deserve.