Improving access to breast health facilities and services for women with disabilities

Research indicates that women with disabilities remain significantly disadvantaged due to lack of accessible facilities and knowledge among service providers about accessibility issues. The objective of this study was to develop and evaluate two model products for improving access and use of breast health services. The checklist lists accessibility aspects that should be provided in breast health facilities, and the guidebook provides information on how to use the checklist (including diagrams and photos) as well as resources for improving accessibility. Qualitative (focus groups, evaluations) and quantitative (surveys, evaluations) methods were used to evaluate both products. Prototype content and format have been tested initially in two focus groups consisting of (1) women with disabilities across age, race, ethnicity, disability type, and socio-economic status and (2) breast health service professionals and other relevant clinicians (e.g. accessibility architect). Prototypes have been modified based on focus group input and pilot-tested with a small sample of Missouri facilities. Preliminary data has been compared between professionals and consumers for each facility as well as between facilities for reliability and validity purposes. Revised products are being evaluated using both consumers and breast health service providers throughout Missouri. The checklist and guidebook will be a resource for replication across the United States. Ultimately, the study will generate a greater understanding of accessibility needs among breast health providers and improve breast health service access and use among women with disabilities.