176570 Needs Assessment Survey of Post-Transition Adults with Cystic Fibrosis

Wednesday, October 29, 2008

Janet K. Brishke, BHS, MPH , Department of Behavioral Science and Community Health, University of Florida, Gainesville, FL
Susan Chauncey Horky, LCSW , Department of Pediatric Pulmonology, University of Florida, Gainesville, FL
In recent years, increased attention has been paid to the process of helping pediatric Cystic Fibrosis (CF) patients transition to adult CF health care. As a result of improved care and increased life expectancy, many more teens are making the transition to adult heath care. For the past several years, the Cystic Fibrosis Foundation has strongly advocated for the development of adequate transition programs. The aim of this study was to evaluate the transition experience of patients who are currently being seen in the adult CF clinic at Shands Hospital at the University of Florida.

Current patients in the adult CF clinic were given a needs assessment that examined how helpful different multi-disciplinary CF care team members were and the barriers the patient faced in transitioning. The participants were also encouraged to include ideas about what would have made the transition process easier for them.

The overarching objective of this study was to better understand the strengths and weaknesses of the current transition process for patients at Shands Hospital CF clinics. In the future, this information will enable the pediatric and adult CF clinic teams to work together with the common goal of revising transition practices. This collaborative effort will ensure a smoother transition process for CF patients.

Learning Objectives:
1) Describe the need for a thorough approach to CF health care transition that includes both the pediatric and adult clinical care teams. 2) Identify aspects of the transition process that are helpful to the general CF patient population.

Keywords: Children With Special Needs, Chronic Illness

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a student affiliated with a major University well known for its research endeavors and have no financial obligations that may alter the quality of my presentation or work. I have also been involved with every step of this project and have been working on it since August 2007.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.