177213 Development and Testing of a Research Ethics Curriculum for Community Health Workers

Tuesday, October 28, 2008: 2:30 PM

Camille Nebeker , Research Affairs, San Diego State University, San Diego, CA
Gayle Simon, MPH , Research Affairs, San Diego State University, San Diego, CA
Ana Talavera, MPH , Center for Behavioral and Community Health, Graduate School of Public Health, San Diego State University, San Diego, CA
Karen Jacqueline Coleman, PhD , Research and Evaluation, Southern California Permanente Medical Group, Pasadena, CA
The community health worker (CHW) model has been used as a successful strategy for promoting health in underserved populations for decades. It has also become a popular model for community-based health promotion research studies. However, there are no resources widely available for training CHWs in ethical research practices when working with community members. In response to this need, a culturally sensitive research ethics curriculum was developed and tested specifically for Latino CHWs. Development of the Project TRES (Training in Research Ethics and Standards) curriculum was done with a panel of experts in Latino culture, health research with underserved communities, and protection of human subjects in community settings. In addition, six focus groups with project managers and principal investigators (n = 11) were conducted to review draft versions of the curriculum. A beta version of the curriculum was tested with 10 female CHWs from the San Diego/Tijuana Mexico border region. Women were 40.9 + 8.2 years old, moderately acculturated, with 44% having a high school education, and many (44%) having an income of less than $1100 per month. The curriculum was developed and tested in three modules. The CHWs had a significant increase in research ethics knowledge as a result of reviewing each module (significance ranged from .016 to .001). In addition, CHWs provided the curriculum development team with a number of suggestions for improvement. The Project TRES research ethics curriculum is now available for use where CHWs are integral members of a research team.

Learning Objectives:
1. Obtain information about ethics training for CHWs involved in research. 2. Learn about the challenges faced by CHWs who are members of a research team. 3. Discuss needs for ethics and research design training among other groups working with CHWs.

Keywords: Community Health Promoters, Research Ethics

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the project director
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.