179620 Locating and recruiting minority and medically underserved women for a study on abnormal mammography follow-up

Sunday, October 26, 2008

Alecia Malin Fair, DrPH , Department of Surgery, Meharry Medical College, Nashville, TN
Debra Wujcik, PhD, RN , Clinical Trials Office, Meharry/Vanderbilt Cancer Partnership, Nashville, TN
Jin- Mann (Sally) Lin, PhD , National Center for Emerging and Zoonotic Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA
Ana M. Grau, MD , Division of Surgical Oncology, Vanderbilt University, Nashville, TN
Ursula A. Halmon, BS , Department of Surgery, Meharry Medical College, Nashville, TN
Kathleen M. Egan, ScD , Risk Assessment, Detection and Intervention Program, H. Lee Moffitt Cancer Center, Tampa, FL
Wei Zheng, MD, PhD , Department of Medicine, Institute for Medicine and Public Health, Vanderbilt Center for Epidemiologic Research, Vanderbilt University, Nashville, TN
Objectives: Recruiting underserved women in breast cancer research studies remains a significant challenge. We attempted to locate and recruit minority and medically underserved women identified in a Nashville, TN public hospital for a mammography follow-up study. Methods: Using a retrospective hospital based case-control study; we identified 227 women (88 African American, 65 Caucasian, 36 other minority, 38 race undocumented) who received an abnormal mammography screening result. Of the 227 women identified, 159 women were successfully located with implementation of an electronic tracking protocol. Eligible women were invited to participate in a telephone survey. Study completion was defined as fully finishing the telephone survey. Results: An average of 4.6 telephone calls (range 1-19) and 2.7 months (range 1-490 days) were required to reach the 159 women contacted. After three months of effort, we located 67% of African-American women, 63% of Caucasian women, and 56% of other minorities. African-American cases were four times likely to be recruited than African-American controls, (OR, 4.07; 95% CI, 1.59-10.30) (p=0.003). After 12 attempts to contact women, 77% of African-American women and 71% of Caucasian women were eventually found. Of these, 59% of African-American women, 69% of Caucasian women, and 50% of other minorities were located and completed the study survey for an overall response rate of 59%, 71%, and 47% respectively. Conclusions: Data collection and study recruitment efforts were more challenging in racial and ethnic minorities. Continuing attempts to contact women may increase minority group study participation but does not guarantee retention or study completion.

Learning Objectives:
1. Understanding the importance of continued attempts to contact and locate minority groups for observational study participation. 2.Recognize that investing study staff time and resources into contacting patients is initially valuable but not sufficient for study retention and complete data collection. 3.Discuss how innovative epidemiologic tracking methods are necessary when conducting research in underserved populations to affect disparities in minority women’s breast cancer mortality.

Keywords: Mammography Screening, Minority Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Owner of the database which abstract data was derived from. First author on two publications generated from said database above.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.