181448 Role of community-institutional partnerships in setting policy agendas that improve access to cancer clinical trials

Monday, October 27, 2008

Naomi Bitow, MPH , Meharry Medical College, Nashville, TN
Brian K. Gibbs, MPA, PhD , Associate Dean for Diversity and Cultural Competency, Johns Hopkins School of Medicine, Baltimore, MD
Rose Brayboy, MPA , Harvard School of Public Health, Boston, MA
Genita Johnson, MD, MPH , Division of Health Policy & Management, Harvard School of Public Health, Roxbury, MA
Gonzalo Bacigalupe, EdD, MPH , Graduate School of Education/Counselling and School Psychology, University of Massachusetts Boston, Boston, MA
Karen Burns White, MS , Initiative to Eliminate Cancer Disparities, Dana Farber/Harvard Cancer Center, Boston, MA
Charity Lower, MPH , Cancer Information Service, New England Region, National Cancer Institute/ American Cancer Society, Boston, MA
Feleshia Battles , Cherishing Our Hearts and Souls Coalition, Boston, MA
Marianne N. Prout, MD, MPH , Epidemiology, Boston University School of Public Health, Boston, MA
Beverly Moy, MD, MPH , Cancer Center, Massachusetts General Hospital, Boston, MA
Nanyamka Hales, MPH , Massachusetts Comprehensive Cancer Control Coalition, Massachusetts Department of Public Health, Boston, MA
Anita Jones , Roxbury Community Research Advisory Board, Boston, MA
Athene A. Wilson-Glover , National Black Leadership Initiative on Cancer, Dana-Farber Cancer Institute, Boston, MA
MariaElena G. Rubio , Division of Public Health Practice, Harvard School of Public Health, Boston, MA
The BID (Breaking It Down: Our Health Our Way) Initiative, a Education Network to Advance Cancer Clinical Trials (ENACCT) pilot education program (PEP), is a project of the community-academic partnership of the Harvard School of Public Health and Cherishing Our Hearts and Souls Coalition. The aim of the three-year project is to reduce local barriers to cancer clinical trials participation through peer education, community centered information dissemination, advocacy, and policy change.

In October 2007, the BID Initiative hosted a cancer clinical trials symposium, Revolutionizing Access: Cancer Clinical Trials and Communities of Color. The symposium brought together a cross-section of stakeholders to raise awareness about the barriers to clinical trials participation from patient, provider, researcher, and industry perspectives.

The symposium served as a catalyst for constructing local policy agendas to reduce local disparities in cancer clinical trials participation. Innovative strategies and recommendations to improve and inform changes to address barriers to access for the medically underserved were identified.

By the conclusion of this session participants will be able to:

1) Discuss the importance of having community, institutional, and municipal representatives involved in cancer clinical trial research and policy agenda setting

2) Identify strategies for engaging diverse stakeholders to a clinical research event

3) Identify strategies to track the translation of recommendation to policy change

Learning Objectives:
1)Discuss the importance of having community, institutional, and municipal representatives involved in cancer clinical trial research and policy agenda setting 2)Identify strategies for engaging diverse stakeholders to a clinical research event 3)Identify strategies to track the translation of recommendation to policy change

Keywords: Clinical Trials, Health Disparities

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I serve principal coordinator of this project, led the planning committee for the clinical trials access symposium, and have directed day-to-day activities on this project since inception.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

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