Support groups for adults with Asperger ‘s Syndrome: More than just stigma-free zones?

There is little research about characteristics of adults with Asperger Syndrome (AS) and the support services they need. This survey of 35 adults with AS provides demographic information, quantitative data on the relationship between support groups for adults with AS and loneliness, and qualitative data about participant perceptions of support groups. Participants were more frequently single (74%), more educated (57% are college educated) and had higher rates of unemployment or underemployment (only 37% have full-time employment) than other US adults (US Census data). Additional data indicated that study subjects were more lonely than adults without AS and that loneliness was correlated with social skills deficits. Differences among adults currently in a support group, adults waiting for a support group, and adults who were in a support but are no longer in a group were also examined. There was no association between support group participation and loneliness. Qualitative data provide insights into content and structure of future support groups. Specifically, some adults attend support groups to address needs that may be better met in other forums such as didactic social skills groups or social events. Results suggest that support groups for adults with AS should be highly structured with clear goals and parameters; significant support may help adults with AS identify and discuss emotions. Results also indicate that adults with AS need more services than are available in order to maximize their quality of life. Implications for future research on the efficacy of groups for adults with AS are discussed.