Returning research findings to the community: Approaches for enhancing meaning and relevance

Community-based participatory research (CBPR) approaches involve the active participation of communities in research from conceptualization to data collection to interpretation of findings and beyond. A critical component of the research process is sharing what is learned from data collection activities in meaningful and relevant ways. As part of the South Carolina Cancer Disparities Community Network, which is utilizing CBPR approaches, two examples of innovative approaches to sharing research findings will be presented. First, a convenience sample from the congregations of participating churches completed a baseline survey on cancer prevention and control behaviors. The baseline survey asked questions about cancer screening, dietary practices, physical activity, and smoking. To date, 1097 individuals representing 19 churches from across the state of South Carolina have completed the baseline survey. The format for sharing baseline results was developed in partnership with church members and community partners. Each church received an individual report comparing its results to statewide data sources. A statewide summary of all church data was also prepared. Second, in collaboration with partnering churches, cervical cancer educational programs were presented. Pre- and post-test evaluations were conducted with 137 participants to assess cervical cancer and HPV knowledge before and after the programs. Following the model of the baseline survey, results are being shared with participants in easy-to-read and understand formats. Data from both the baseline surveys and educational programs are openly shared with partners, who are encouraged to use study findings to address identified opportunities for cancer prevention and control activities.