191355 Globalization of PHRs and impact on persons with disabilities

Monday, October 27, 2008: 10:30 AM

Lloyd J. Tribley, MS , Tribley~Wu & Associates, LLC, Tallahassee, FL
This year, 2008 was projected as the year of the Personal Health Record. The growth of PHR Systems (PHRs) is a global phenomenon with the US, Scandinavian, European, and Pacific-Rim countries promoting their use. PHRs hold great promise for empowering consumer's access to and control of their personal health information. For marginalized populations such as persons with disabilities comprising nearly 20% of the US population, most PHRs are not usable and accessible only reinforcing the digital divide.

A portion of this session will focus on the global expansion of PHRs and the impact of their technical “inaccessibility” on persons with disabilities. Core principals of Accessible Electronic and Information Technology will be presented. highlighting key technical issues. The session will close with a discussion of the role of public health in building proactive consumer-driven Health Information Technology accessibility collaboratives.

Remember, the accessibility of PHRs is more than just a technical issue; it's a Civil Rights issue!

Learning Objectives:
Participants will understand the global Health Information Technology (HIT) movement in the context of developments in the Personal Health Record (PHRs) systems field and the relationship to persons with disabilities. Participants will identify the key elements of Accessible Electronic and Information Technology (AeIT) design that can be employed to make systems more accessible. Accessible PHRs (and HIT) begins with committed public health practitioners. Participants will name stakeholders in the disability community and disability and AeIT fields to support the formation of consumer-driven HIT accessibility collaboratives.

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: tba
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

See more of: Personal Health Records: Overcoming Barriers from Childhood to Adulthood for Persons with Disabilities Part II
See more of: Health Informatics Information Technology