202199 Ehrs and Phrs : Security and Privacy Concerns Among Communities of Color

Monday, November 9, 2009: 11:10 AM

Ruth Perot, MAT , DC Healthy Kids, Healthy Communities, Summit Health Institute for Research and Education, Inc., Washington, DC, DC
With substantial funding from the Economic Stimulus Package, strong private sector initiative and bipartisan leadership from the executive and legislative branches of government, health information technology (HIT) is emerging as an important strategy to improve the quality and cost-effectiveness of the nation's health care system. The presenter plans to make the case that racial and ethnic minorities, as well as other underserved populations, must not be left behind as the HIT movement gains momentum. In fact, failure to include these populations may result in the exacerbation of health disparities.

While there are clear benefits for these groups resulting from their use of HIT, there are also barriers and areas of concern. Among them are concerns about privacy and confidentiality, particularly in those communities that have experienced abuses (e.g., U.S. Government Syphilis Study at Tuskegee) resulting from researcher misconduct and the absence of informed consent. An in depth understanding of these historical experiences, available culturally appropriate protections to prevent privacy-related abuses, as well as the need for targeted outreach and interventions for these groups will be essential if HIT is to achieve its potential to democratize and optimize health care in the U.S.

Learning Objectives:
Discuss perspectives/concerns about HIT privacy, security and confidentiality in communities of color and identify at least one method utilized to address these concerns effectively; Describe at least one governmental policy and one community-based initiative that have achieved (or have the potential of achieving) expanded use of EHRs and PHRs. In communities of color. Discuss the role of the National Health IT Collaborative for the Underserved and other efforts to advance consumer protection and engagement in HIT.

Keywords: Health Information Systems, Health Disparities

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Ruth Perot has a career spanning over 25 years in the health care industry. She is the Executive Director and Chief Executive Officer of the Summit Health Institute for Resarch and Education, Inc. Concurrently, she serves as managing co-principal of the Program Management Office which is charged with the responsibility for administrative coordination for the Collaborative, including support for its four workgroups and Management Committee comprising Apptis, Association of Clinicians for the Underserved, eHealth Initiative Foundation, HIMSS Foundationís Institute for e-Health Policy, Office of Minority Health, HHS and SHIRE. She is an author of relevant publications and is a Member, Advocacy and Public Policy Steering Committee, HIMSS; Membership and Communications Committee, National eHealth Initiative (formerly AHIC-2)
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.