203087 Cultural differences in parent-adolescent agreement on the adolescent's asthma-related quality of life

Tuesday, November 10, 2009: 9:15 AM

Mary Kay Rayens, PhD , College of Nursing and College of Public Health, University of Kentucky, Lexington, KY
Erla Kolbrun Svavarsdottir, PhD, RN , Faculty of Nursing, University of Iceland, Reykjavik, Iceland
Patricia V. Burkhart, PhD, RN , College of Nursing, University of Kentucky, Lexington, KY
Mei Zhang, MPH, MSN , College of Nursing, University of Kentucky, Lexington, KY
The purpose was to determine the degree of agreement between parent's and adolescent's ratings of the adolescent's asthma-related quality of life (QOL); and to assess whether consensus among parent-child dyads differs by country. The sample was comprised of 30 adolescents with asthma, each with one parent who participated, were recruited from pediatric practices in Kentucky and Iceland; half were from each country. Adolescents ranged from 13-17 years and were mostly male. Parents were between 33-55 years; all but one were female. The adolescent's QOL was assessed by both the teen and their parent using analogous versions of the Pediatric Quality of Life Questionnaire, Asthma Module. Parent-adolescent differences were determined using paired t-tests, and associations were assessed with intraclass correlation coefficients (ICCs). Differences between countries were determined using two-sample t-tests. The mean bias was -85.8, small compared to the maximum possible score of 2800; this difference was not significant. The ICC of the QOL score was fair (0.39). Parents from the U.S. tended to underrate their child's QOL, while parents from Iceland tended to overrate it, a significant cultural difference (p = .007). While average bias was low, the range of dyad-specific differences, particularly between countries, was considerable; this contributed to the relatively low ICC. Family-centered interventions for adolescents with asthma may benefit from improving parents' understanding of how this chronic condition affects QOL, and such interventions may have to be tailored for cultural differences.

Learning Objectives:
Evaluate the degree of agreement in adolescents' asthma-related quality of life between adolescent self-assessment and parent's perception. Determine whether rating differences between parent and child for health-related quality of life vary between the U.S. and Iceland.

Keywords: Quality of Life, Asthma

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a Professor of Nursing and Public Health at the University of Kentucky. I was a co-investigator on the project from which this abstract was written, and I conceptualized this paper, including the data analysis and writing.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.