203465 Community-based cancer education and survivorship support for Native Americans in Connecticut

Sunday, November 8, 2009

Nina Wampler, DSc, MPH , Arizona Cancer Center, University of Arizona, Pine, CO
Markos Samos, MA, LPC , Foxwoods Resort Casino, Mashantucket Pequot Tribal Nation, Mashantucket, CT
Diane E. Weiner, PhD , Mountaintop Medical Anthropology Projects, Woodstock, VT
Mary K. Canales, PhD , Grants Department, Mashantucket Pequot Tribal Nation, Bemidji, MN
Connecticut Native Americans are underserved in terms of cancer education and research to address their cancer health needs. Our project team used a community-based participatory model for mentoring and training community members as cancer educators and advocates. The first programs to address cancer needs of Connecticut Native communities are: Families Together; Is the Cancer Information Service Reaching Connecticut Native Americans? Understanding Cancer Information Seeking; and Colorectal Cancer Screening among Native Americans in Connecticut. These community-based projects received guidance from the Northeast Tribal Cancer Advisory Board with representatives from three tribal nations and the Indian Affairs Council of Connecticut. The programs developed have helped shape the future of cancer education for Native communities in Connecticut. This presentation will share our methodologies and results from three cancer education and survivorship projects. The projects include 1) epidemiology and anthropology data that serves as the foundation for all programming; 2) a cancer education training program for cancer survivors from Native communities; 3) community and health professional survey data on cancer information needs; and 4) summaries of community cancer education learning strategies, with a special focus on intergenerational learning approaches to cancer prevention, early detection, treatment, and survivorship. The cornerstone of these projects includes Native voices and experiences from our talking/educational circles. These community-based projects have created a dialogue about cancer and cancer survivorship advocacy among Connecticut Native communities through mentorship and training of community members. These projects serve as models for other potential community-based programs in the Northeast and throughout the country.

Learning Objectives:
1. Describe three community-based programs for training community members on cancer education and survivorship among Native Americans in Connecticut. 2. Compare the methodologies, data and results of the programsí interviews, talking/education circles, resource listings and quantitative surveys. 3. Discuss the impact these programs have made on cancer awareness and survivorship among Native communities in Connecticut.

Keywords: Cancer Prevention, Community-Based Health Promotion

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the epidemiologist on our cancer research and education projects. As a Native researcher, I am committed to conducting community-based research and education to serve the needs of Native people.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.