204442 System and stakeholder coordination for enhancing early identification and early intervention for children with autism spectrum disorder and related developmental disabilities

Tuesday, November 10, 2009

Georgina Peacock, MD, MPH , National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, GA
Sue Lin, MS , Association of University Centers on Disabilities (AUCD), Silver Spring, MD
Amanda Dudley, MPH , National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, GA
Tracy Mann, MA , Center for Disabilities Studies, University of Delaware, Newark, DE
The CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD) launched “Learn the Signs. Act Early.” (LTSAE) in 2004 to increase awareness of parents, health professionals, and early educators about developmental milestones and the importance of early identification of children with signs of autism spectrum disorder (ASD) and developmental disabilities. With the success of the “Learn the Signs” message, “Act Early” initiatives expanded through NCBDDD's collaboration with the Association of University Centers on Disabilities (AUCD) and the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA). These initiatives bring together the systems of care to improve the lives of children identified to be at risk for developmental delays.

The Act Early Summits convened families, state agencies, policymakers, service providers, researchers, and other stakeholders with an active role in developmental disabilities to develop state plans using logic modeling guidelines from the Kellogg Foundation. Recent analyses of the state plans show common themes including increasing awareness about the LTSAE campaign and developing a common understanding of the opportunities and challenges to early identification and diagnosis. The state teams identified the needs and resources of the state to address barriers to identification, assessment, diagnosis, and intervention of children with ASD.

This session will address how states are confronting the many challenges in the current health care and educational systems for children with ASD and related developmental disabilities and their families. Through building and strengthening of the state team network, enhanced communication can be achieved among stakeholders.

Learning Objectives:
Describe the challenges between the health care and education systems in identifying and serving children with autism and related developmental disabilities Explain how the regional summit model was used to build collaboration among state stakeholders Discuss the outcomes from the Act Early Summits held to date of the Annual Meeting Assess effects of utilizing summit model to enhance service coordination and provision for children with ASD Identify measures of system and policy changes in serving young children with ASD and their families

Keywords: Collaboration, Policy/Policy Development

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am currently a Health Communications Specialist with the "Learn the Signs. Act Early" campaign and worked closely on these projects. I received my MPH degree from Tulane University in May 2004.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.