206826 Building community capacity to support reproductive health education for women with intellectual and developmental disabilities

Wednesday, November 11, 2009: 9:06 AM

Tracy H. Boehm, BA , Rural Institute on Disabilities, University of Montana, Missoula, MT
Meg Ann Traci, PhD , Rural Institute, The University of Montana, Missoula, MT
Jill Baker, BS , Education Director, Planned Parenthood of Montana, Great Falls, MT
A statewide survey of adult consumers with intellectual and developmental disabilities (I/DD) revealed rates of annual clinical breast exams, mammograms, and pap smears among women age 40 and older were below Healthy People 2010 objectives. Prior evaluation of a group-based health promotion intervention, facilitated by disability providers, showed increased knowledge of health care procedures among women with I/DD. Building on this work, we hypothesized that increased involvement of clinic-based sexuality health educators would improve knowledge gains, screening rates, and program sustainability. We partnered with nine statewide agencies to address curriculum weaknesses and develop strategies to implement workshops in five major regions of the state. We then supported a full-day workshop resulting in 15 master trainers including sexuality health educators, disability providers, and public health professionals who could form local planning committees statewide. Pre-training evaluations showed 18.2% of facilitators agreed they knew how to prepare a woman with I/DD for a pelvic exam, whereas 100% of facilitators agreed after the master training. Fifty percent of facilitators agreed they knew techniques to reduce anxiety about medical visits at pre-training, and 100% of facilitators agreed they knew techniques at post-training. There was an increase (70%) in the number of facilitators at post-training who agreed they knew how to prepare women with I/DD to be active participants in their healthcare. In the eight months following the master training, facilitators planned five workshops. We will describe our community capacity building strategies, master training outcome data, and consumer evaluations from five health promotion workshops.

Learning Objectives:
1.Identify community stakeholders who support reproductive health education for women with I/DD. 2. Discuss capacity building activities to promote reproductive health education for women with I/DD. 3. Develop a plan to implement reproductive health promotion workshops for women with I/DD.

Keywords: Community-Based Partnership, Women's Health

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I will have completed my MPH by the APHA conference date in November 2009. My education has equipped me with the skills necessary to deliver a presentation at a conference of this caliber. In addition, I have worked at the Rural Institute on Disabilities at the University of Montana for more than one year, and have successfully contributed to several community-based research and health promotion program activities. My knowledge-base of women's health care also contributed to the direction of this research. Most importantly, as a former manager of Planned Parenthood of Montana, I have extensive experience working with them as our main partner in this project.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.