211712 Fighting the IRB in community based participatory research: A case study

Monday, November 9, 2009: 10:30 AM

Ruth Malone, RN, PhD, FAAN , Social and Behavioral Sciences, University of California, San Francisco, San Francisco, CA
Problem/Objective: Recently, there has been increased interest in and funding support for community based participatory research (CBPR), in which academic researchers work in partnership with community members. This interest arose out of a need to engage marginalized communities which are affected by health disparities, build community capacity, and end relationships of ‘dominance over' in favor of ‘partnerships toward' health. TRDRP has developed research funding mechanisms explicitly requiring both academic and community co-Principal Investigators and use of community participatory research approaches. Yet such partnerships can prove difficult mergers of very different cultures. Methods: Review of CBPR principles and discussion of obstacles to successful CBPR, using examples encountered in one such current partnership (the Protecting the ‘Hood Against Tobacco project). Results: Community-academic research partnerships may face numerous institutional and other obstacles, including: a) human subjects review issues, b) insurance coverage and liability issues for community-based activities, c) role delineation and development, d) the dynamic nature of such projects, and e) the sometimes conflicting ethical demands and expectations of academic and community partners. Conclusions: If community-based participatory research partnerships with academia are valued as worthwhile, then research partners, funders and institutions must consider how to address existing academic structural and other barriers to such projects.

Learning Objectives:
1. Describe two barriers that researchers who conduct community based participatory research may face when seeking IRB approval. 2. Discuss two strategies for dealing with common barriers that community based participatory researchers can implement when seeking IRB approval.

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have conducted research and published on the topic.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.