5046.0 Public education, social justice, and advocacy in genomics

Wednesday, November 11, 2009: 8:30 AM
This session focuses on various contributions to our understanding of the importance of public education and advocacy to the field of public health genomics. Educational programs are an essential component in translating research and clinical genetics into improved health outcomes for the general population. One presenter will discuss the Access To Credible Genetics Resources Network (ATCG-RN), a project that led to the creation of an online toolbox intended to facilitate development of high quality educational materials for both professionals and the public. In order to improve the science education of high school students, a novel curriculum, BioCONECT, was developed that takes advantage of teenagers’ fascination with technology to peak their interest in a career in biology or genetics. Advocacy and outreach are also critical in promoting social justice related to genomics. The role of advocacy in bringing about policy changes in newborn screening over time will be examined within the Advocacy Coalition Framework. Finally, the importance of social marketing that addresses the needs and interests of a specific community is highlighted using the Deaf community as an example of a cultural and linguistic minority.
Session Objectives: 1.Formulate an approach to creating or evaluating educational materials on genetics, focusing on the quality, content and accessibility of information. Also, describe the BioCONECT curriculum as an educational tool. 2.Describe the Advocacy Coalition Framework, and identify and describe the influence of the advocacy coalitions involved in newborn screening policy changes over time. 3.Identify barriers for awareness of genetics services among the Deaf community, and understand how a social marketing plan can be used as an important component in improving usage by this group.
Patricia Page, MS, CGC

8:30 AM
Genetic health information: Trust it or trash it? A tool for creating and evaluating genetics educational material
Kate Reed, MPH, ScM, Meredith Weaver, MS, ScM, Amelia Chappelle, MA, MS, Carol Greene, MD, Miriam Blitzer, PhD, FFACM and Sharon F. Terry, MA, LHD
8:50 AM
9:10 AM
BioCONECT (Biology and Cancer, ONline Education Connecting Teens): An innovative and interactive high school curriculum
Laura Hemminger, MPH, CHES, Jennifer Campbell, Hetal Vig, MS and Deborah Toppmeyer, MD
9:30 AM
Developing a “Social Marketing Plan” for appropriate genomic medicine -meeting the needs of a cultural and linguistic minority group: The Deaf community
Yoko Kobayashi, MPH, Patrick Boudreault, PhD, Erin Baldwin, MS, CGC, Michelle Fox, MS, CGC, Loriel Dutton, NIC, LeeElle Tullis, NIC, Wayne Grody, MD, PhD and Christina Palmer, PhD

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Genomics Forum
Endorsed by: Socialist Caucus, Social Work

CE Credits: Medical (CME), Health Education (CHES), Nursing (CNE), Public Health (CPH)

See more of: Genomics Forum