Panel Discussion

In recent years, the Indigenous communities of the U.S. have expressed interest in increasing their understanding, capacity in effective use, and control over health data for the purposes of developing programs and in forming policy. Indigenous communities express a clear understanding of the value of data, and especially of high quality data, as a tool for making better program and funding decisions that will have demonstrated benefits for their community members. This insight and strategy is tremendously important for any program wishing to strengthen and expand its use of health data. An example of successful strategies employed by Indigenous communities within the U.S. is seen in the creation and establishment of the Tribal Epidemiology Centers. Funded by the Indian Health Service, Tribal Epidemiology Centers are community or Tribal-based organizations that plan, coordinate, and perform essential public health services necessary to address the health deficiencies specific to AIAN. In 2009, the Native Hawaiian health organization, Papa Ola Lokahi, announced the establishment of its own Indigenous epidemiology center. Effectively addressing the health and wellness of the U.S. Indigenous populations demands a greater accountability with sound planning and development. Central to this effort is consistent, specific, and standardized data collection and the utilization of that information which addresses all factors affecting Indigenous health. Indigenous epidemiology centers manage public health information systems, investigate diseases of concern, manage disease prevention programs, and coordinate activities with other public health authorities. The Indigenous epidemiology centers focus on collaboration with existing public health entities and filling gaps in the public health system where Indigenous populations’ needs might otherwise go unnoticed.

Session Objectives: Post session, participants will be able to: 1. Identify community based epidemiological needs 2. Describe 3 community based solutions to unmet needs 3. Describe 3 culturally appropriate/relevant service strategies 4. Describe 3 policy recommendations for improving data collection in small populations