219184 Patients' Perspectives on Cancer Patient Navigation: A Qualitative Study of Patients Enrolled in the Moffitt Cancer Center Patient Navigation Research Program

Monday, November 8, 2010 : 12:45 PM - 1:00 PM

Kristen Wells, PhD, MPH , Health Outcomes and Behavior, H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
Gwendolyn Quinn, PhD , Health Outcomes & Behavior, Moffitt Cancer Center & Research Institute, Tampa, FL
Cathy D. Meade, PhD RN , Interdisciplinary Oncology, University of South Florida/Moffitt Cancer Center, Tampa, FL
Mariana Arevalo , Cancer Prevention and Control, H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
Maisha Kambon, MPH , Center for Equal Health, University of South Florida, Tampa, FL
Ercilia Calcano, MPH , Cancer Prevention and Control, H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
Richard G. Roetzheim, MD, MSPH , College of Medicine (Family Medicine), University of South Florida, Tampa, FL
Patient navigation is a barrier-focused intervention aimed at reducing health disparities. This study evaluated patients' perspectives of the role of patient navigators (PNs) in providing cancer care services to patients who experienced a screening abnormality or diagnosis of breast or colorectal cancer. Thirty patients (30% Hispanic; 63% Caucasian; 17% African American; 93% female; mean age: 52 years) participating in the Moffitt Cancer Center Patient Navigation Research Program completed in-depth semi-structured interviews evaluating their experience during a cancer diagnostic or treatment process (63% breast; 37% colorectal). Using a grounded theory approach and hand coding, verbatim interview transcripts were coded for key themes. Results showed the following key themes: (1) the unique role of both family and PN in providing support; (2) PN's facilitative role in overcoming health care system barriers; (3) PN's role in providing emotional support to patient and family; (4) the role of spirituality in coping with emotional distress; and (5) patients' experience in obtaining information about healthcare. For most patients, family is the biggest source of support. Patients frequently mentioned PNs addressed health system and information barriers, like scheduling appointments and providing education about cancer diagnostic and treatment procedures. To a lesser extent, PNs provided emotional support to patients and their families; however, most patients relied on spirituality to cope with emotional distress related to diagnostic testing and cancer treatment. Results of this investigation will contribute to refinement of navigation programs and aid in developing improved selection criteria of patients most likely to benefit from navigation services.

Learning Areas:
Administer health education strategies, interventions and programs
Advocacy for health and health education
Conduct evaluation related to programs, research, and other areas of practice
Diversity and culture
Planning of health education strategies, interventions, and programs
Social and behavioral sciences

Learning Objectives:
1. Describe a patient navigation program 2. Identify services that patient navigators provide to patients receiving cancer care

Keywords: Cancer, Lay Health Workers

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I drafted the research protocol and analyzed the data collected. I also drafted the abstract.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.