Creation of a nationwide network for Asian and Pacific Islander cancer survivors

Cancer survivors have unique experiences that can benefit from networking with others who are experiencing (or have experienced) similar events and challenges. For Asian Americans, Native Hawaiians and Pacific Islanders (AA & NHPI), the cancer survivorship experience includes distinct characteristics that are influenced by language, cultural factors, and immigration. Although national resources exist that support networking of cancer survivors from mainstream communities, such resources for AA & NHPI are rare. In this presentation we will describe the creation of the first national network for AA & NHPI cancer survivors in the United States. The Asian and Pacific Islander National Cancer Survivors Network was initiated in 1998 and recently celebrated its first decade by hosting a national AA & NHPI cancer survivorship conference. Our presentation will highlight the strategies used in developing a national identity for the Network: advocacy work and a speakers bureau; scientific presentations and publications; use of news, documentary film, and other media; partnering with researchers, lawmakers, and community organizations; and hosting of national meetings on AA & NHPI cancer survivorship. Finally, we will describe the Network's latest endeavor, the CDC-funded national Community & Advocacy Training on Cancer and Health (CATCH) program, which provides community-based attendees with training, tools, and skills to be effective advocates and leaders for addressing cancer control issues across the cancer care continuum for AA & NHPI communities. The presentation will close with lessons learned from the Network's efforts over the past 12 years.