225312 A Systematic Review of Community-Based Family History Projects

Sunday, November 7, 2010

Sarah E. Harding, MPH , Hospital and Ambulatory Policy Group, Centers for Medicare and Medicaid Services, Baltimore, MD
Andre Pilon, PhD , Education and Community Involvement Branch, National Human Genome Research Institute/NIH, Bethesda, MD
Vence L. Bonham, JD , Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD
Introduction: Since 2004, the U.S. Surgeon General has supported a health awareness program promoting the value of knowing your family health history. What role do community based organizations play in the dissemination of family history awareness programs? The findings of this study can be examined to learn of factors that both facilitate and are barriers to obtaining a family history, and in turn affect how genetic based health awareness programs and services are successfully delivered to communities.

Methods: We performed a systematic review of community-based family health history projects conducted and resources developed in the last 10 years. Twenty-three electronic literature databases (e.g. PubMed, Web of Science, Cochrane Databases, ERIC, Psyc Info) were searched to identify community based family health history projects and resources. Projects and resources had to (1) describe evaluation of a family history tool; (2) include interaction with a community; (3) involve community engagement during the development or planning phase; and (4) published in English (5) useable directly by the public.

Results: The search of 23 electronic databases identified 23 history projects and 36 family history tools and resources that met inclusion criteria. We will describe the projects and resources.

Conclusions: As we study the benefits of collection of family history, in assessing disease risk it is necessary to also study the role of ‘community'. Thus, outcomes of these projects, tools and resources can be examined to learn of factors that both facilitate and are barriers to obtaining a family history, from a community's perspective. 010-->

Learning Areas:
Assessment of individual and community needs for health education
Planning of health education strategies, interventions, and programs
Public health or related education

Learning Objectives:
Describe characteristics of community-based family history projects and discuss how communities can successfully access family history resources.

Keywords: Community-Based Public Health, Health Communications

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am qualified to present because I oversee programs related to family health history.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

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