Understanding the Unique Needs, Strengths and Cultural Values of African American Parents of Children with Severe Disabilities

Meeting the needs of children with severe disabilities and their families is historically grounded in the medical and education professions. During the 1960's social science disciplines began to play a vital role in understanding the challenges faced by children with disabilities and their families; and implementing policies and program services to address identified needs. Research aimed at deepening knowledge of children with disabilities has characteristically shown a preoccupation with impairment; vulnerability and dependency, and services. More recently a significant number of researchers have focused on parents of children with disabilities; specifically, the perspectives of parents in caring for a child with a disability. However, the literature offers very few insights into the perceptions of African American parents and their role in parenting children with severe disabilities or the experiences of parents who combine cultural influences with caring for children with severe disabilities. This presentation will critically examine what has been discovered about African American parents of children with severe disabilities; what cultural factors influence parents' ability to care for their child with a disability; the spiritual model of disability and cultural understanding of disability; and the degree to which professionals are responsive to African American families' unique needs, strengths, and cultural values. In addition, the presenter will discuss the implications for professionals in the field of social work, health care, education, human services, and social policy. Attendees will understand their critical role in influencing policy development and service delivery to African American children with severe disabilities and their families.