230888 Access for All to Emerging Technologies

Tuesday, November 9, 2010 : 10:50 AM - 11:10 AM

Sharon F. Terry, MA , Genetic Alliance, Washington, DC
The presentation will present the perspective of individuals with genetic conditions, many of whom face significant barriers to diagnosis and treatment. In many cases, cost-benefit and public health utility of information and medical technologies is difficult to determine, but the immediate impact on diagnosis, treatment, and research for genetic diseases is significant. This session will explore how better screening and service delivery infrastructure can support rapidly emerging technologies and reduce inequities.

Learning Areas:
Advocacy for health and health education
Provision of health care to the public
Social and behavioral sciences

Learning Objectives:
Describe treatment challenges faced by individuals with rare and common diseases. Identify two opportunities related to personalized medicine for treating individuals with rare and common diseases.

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have worked for 15 years increasing access to healthcare, examining emerging technologies and leading advocacy in healthcare.
Any relevant financial relationships? Yes

Name of Organization Clinical/Research Area Type of relationship
Genetic Alliance Breast Cancer Assay Stock Ownership
DNA Direct genetic testing Advisory Committee/Board

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.