238275 Promoting Community Engagement in Genomic Research and Practice

Tuesday, November 1, 2011: 12:50 PM

Toby Citrin, JD , Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, MI
E. Hill DeLoney , Flint Odyssey House Health Awareness Center, Flint, MI
Ella Greene-Moton , Flint Odyssey House Health Awareness Center, Flint, MI
Stephen M. Modell, MD, MS , Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, MI
This presentation will report on the “GenoCommunity Think Tank” national meeting that took place in St. Louis, MO, in September 2010. The goals of the meeting included: (1) sharing best practices for increasing community engagement in genomics; (2) developing strategies for promoting community-based genomics research in prevention research centers; (3) developing strategies for promoting genomic applications in community-local public health department practice; (4) sharing information on policy issues and how to engage community members in policy development; and (5) developing a permanent committee to further these activities.

125 people attended the meeting, half of whom were from grass-roots communities partnering in prevention research centers. Participants in 22 prevention research centers from as many states attended. The meeting was planned by a community-academic committee using community-based participatory research principles. Community and academic participants in prevention research centers and university-based genomics research centers shared strategies for developing partnerships and incorporating genomics in community education, prevention research and public health practice.

A post-meeting survey of meeting participants disclosed that over 60% intend to participate in genomics research and practice utilizing community-academic-practice partnerships and that a significant portion of participants intend to get involved in genomics policy-making. More community participants than academic participants are interested in incorporating genomics in prevention research. A permanent Special Interest Group on Genomics has been formed by community participants to advance the agenda developed at the St. Louis meeting. An interactive website is being developed to facilitate and support these activities.

Learning Areas:
Assessment of individual and community needs for health education
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Public health or related education
Public health or related research

Learning Objectives:
Assess community interest in (1)genomics education, (2)participating in research and practice utilizing genomic tools, and (3) participating in genomic policymaking and advocacy, with the purpose of addressing community health issues

Keywords: Genetics, Community-Based Public Health

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I was the facilitator and grantee of the conference being reported on in this presentation
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.