Needs Assessment on HBV Biospecimen Research in Chinese Americans

Background: There is a paucity of information on recruitment of minority participants, especially Asian Americans, for biospecimen research. Objective: The purpose of this needs assessment study was to have a better understanding of Chinese American cultural beliefs, attitudes, perceived barriers and intentions to participate in HBV related biospecimen research, as well as receive recommendations for developing and implementing a culturally appropriate education intervention. Methods: Focus groups and in-depth interviews were used for data collection. Two focus groups with Chinese community lay members (n=20) and 8 in-depth interviews with Chinese community leaders who represent four Chinese CBOs were conducted in November 2009. Results: Forty percent of the participants indicated that blood donation may be harmful to one's health. Participants expressed that if the research effect had close connection or direct benefit, they would be more willing to participate. About one-third of the participants expressed willingness to donate blood for future HBV biospecimen research for the reason of advancing science. All participants stated that culturally appropriate education is important and urgently needed. They suggested that the education program should be carried out with community leaders in order to achieve its success. They also indicated the importance of training community health workers so that they can clearly articulate the purpose of the program to the community members. Conclusion: Findings from the focus groups and in-depth interviews with community leaders and members provided us with solid evidence and profound insights for developing culturally appropriate intervention to increase biospecimen research in Chinese Americans .