242914 Using perceptual mapping methods to understand gender differences in perceived barriers and benefits to HIV clinical research participation: A study with urban minority HIV patients

Tuesday, November 1, 2011: 9:10 AM

Sarah Bauerle Bass, PhD, MPH , Department of Public Health, Temple University, Philadelphia, PA
Caitlin Wolak, MPH , Department of Public Health, Temple University, Philadelphia, PA
Ellen Tedaldi, MD , General Internal Medicine, Temple University Hospital, Philadelphia, PA
Mary VanDenBerg-Wolf, MD , General Internal Medicine, Temple University Hospital, Philadelphia, PA
Caitlin Rohrer, BS , Department of Public Health, Temple University, Philadelphia, PA
Minority participation in HIV clinical research is critical to ensure understanding of the impact of current medications or interventions on all populations. Research suggests that men and women may perceive participation differently, but little is known about these differences specifically in minorities. Using Perceptual mapping, a tool to create three-dimensional models that represent how a survey group conceptualizes elements, we surveyed minority HIV patients (n=50) from a Philadelphia HIV clinic to assess perceived risks and benefits of HIV research participation. Perceptual maps were generated by gender to graphically illustrate these concepts and how they impacted willingness to participate in clinical research. Results showed clear differences, with men being farther away from the participation variable. They were specifically more concerned with disclosure of HIV status, experimentation, and not knowing about HIV clinical trials. Men also expressed more distrust of the medical system and researchers and clearly doubted the origin of HIV. Women, on the other hand, were slightly closer to the participation variable and perceived issues surrounding medication to be significant obstacles to participation. Medication barriers included fear of losing the stability that their current medication regime provided, the medication not working in their body, being in the placebo group and experiencing side effects to the drug. Understanding perceptions of HIV clinical research by gender has significant implications for how best to tailor messages to increase minority participation. Gender differences indicate that messages might need to be different for men and women to encourage them to participate in HIV clinical research.

Learning Areas:
Assessment of individual and community needs for health education
Planning of health education strategies, interventions, and programs

Learning Objectives:
1. Discuss how perceptual mapping methods can conceptualize the benefits and barriers of urban minority HIV patients to participating in HIV clinical research. 2. Explain the differences by gender in perceptions of barriers and benefits to participating in HIV clinical research.

Keywords: HIV/AIDS, Clinical Trials

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Ph.D. in public health; Co-director of Risk Communication Laboratory where this study was done
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

See more of: Gender, Sexual Health, & HIV/AIDS
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