245714 Successful community HIV vaccine research education with consumer leaders

Monday, October 31, 2011

Carole S. Treston, RN MPH , Executive Director, AIDS Alliance for Children Youth & Families, Washington, DC
Sable K. Nelson , Program Associate for Training and Education, AIDS Alliance for Children, Youth & Families, Washington, DC
Linda H. Scruggs, MHS , Director of Programs, AIDS Alliance for Children, Youth & Families, Washington, DC
Maritza Valenzuela, MPH CHES , Adolescent Health, Association of Maternal and Child Health Programs, Washington, DC
Issue(s) According to the Center for Disease Control and Prevention, in 2006, there was an estimated 1,106,400 living with HIV, with 21% undiagnosed. Approximately 56,300 people were newly infected that year. Although there is an abundance of information about HIV vaccine research and other biomedical HIV prevention interventions, at risk and infected individuals remain uninformed. Description Building upon the strength of its ten-year-old flagship consumer leadership program, a national AIDS organization partnered with several program graduates to conduct local HIV vaccine educational session in communities across the nation. With support from a national vaccine research initiative, training content included vaccine basics as well as strategies to reduce and diminish fears that are common in the graduates' communities of origin. Through the leadership program graduates, who had expertise as trainers and intrinsic familiarity with their local community, the initiative was able to successfully disseminate HIV Vaccine education. Lessons Learned This year, more than 10 leadership program graduates reached approximately 325 individuals. The culturally competent graduates increased the understanding of HIV research development and clinical trial participation to other consumers. Community perceptions and knowledge increases were measured by trainer self-assessment evaluations and participant workshop evaluation forms. Recommendations A peer-lead approach to community-level HIV vaccine education can increase awareness of and support for HIV vaccine research. This hopefully will translate into an increasingly diverse and representative study population, including at-risk women and youth.

Learning Areas:
Administer health education strategies, interventions and programs
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Protection of the public in relation to communicable diseases including prevention or control
Public health or related education
Public health or related research

Learning Objectives:
Identify the need for peer lead discussions regarding vaccine awareness within communities of origin Address the common fears and apprehensions seen on a community level due to the history of vaccine trails within targeted populations Discuss best practices in HIV vaccine education message dissemination

Keywords: HIV/AIDS, Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am Executive Director of the national organizing that implemented the education program in partnership with a national vaccine research initiative.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.