248487 Community Based Participatory Research: Recruitment and retention best practices and lessons learned from the NIH Community Child Health Network

Tuesday, November 1, 2011: 12:45 PM

Robin Gaines Lanzi, PhD, MPH , Department of Health Behavior, University of Alabama at Birmingham, Birmingham, AL
Maxine Vance, RN, MS , Senior Director of Clinical Affairs and Quality Assurance, Baltimore City Healthy Start, Inc., Baltimore, MD
Community Committee Community Child Health Network, NIH Community Based Participatory Research Project , Health Behavior Department, University of Alabama at Birmingham, Birmingham, AL
Project Coordination Committee Community Child Health Network, NIH Community Based Participatory Research Project , Department of Health Behavior, University of Alabama at Birmingham, Birmingham, AL
For over seven years, our 5-site NIH Community Based Participatory Research network – the Community Child Health Network (CCHN) - has worked together to understand the persistent maternal and child health disparities among 2,000+ families by assessing stress and resilience in their home and neighborhood environments, via interviews, biomarkers, and neighborhood assessments. This CBPR study is an observational, longitudinal study; its scientific integrity depends on high rates of continued participation. Historically, many longitudinal studies demonstrate an increased rate of attrition among individuals and families most affected by health disparities – including those with very low income, minority racial and/or ethnic status, and low educational attainment. To address this, CCHN Community and Project Coordination Committees partnered to review and implement best practice recruitment and retention strategies. We will share these best practices and lessons learned, which include extending the timetable for study recruitment, refining our recruitment and retention strategies, hiring additional staff, developing participant-specific informational materials, convening a community father advisory group to develop recruitment and retention strategies specific to the challenges of father participation in the study, disseminating additional reminders, and maintaining project identity. We fully recognize that there are always areas for improvement and “one size does not fit all.” We feel a critical aspect is the input from field staff across all sites, who have a rich understanding of what is happening in the lives of the families and what is affecting their participation. We will share overall numbers and demographic specific information on recruitment, enrollment, and retention.

Learning Areas:
Administer health education strategies, interventions and programs
Assessment of individual and community needs for health education
Conduct evaluation related to programs, research, and other areas of practice
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Public health or related research

Learning Objectives:
Articulate recruitment and retention best practices. Describe lessons learned from the NIH Community Based Participatory Research Network: The Community Child Health Network

Keywords: Community-Based Partnership, Community Health Promoters

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Maxine Reed-Vance serves as Director of Clinical Affairs and Quality Assurance at Baltimore City Healthy Start. Ms Reed-Vance has worked with Baltimore City Healthy Start since the programs inception in 1993. She has over 30 years of experience in obstetrical nursing and has worked in institutions such as the Johns Hopkins hospital, the Jefferson Davis Hospital (now Lyndon B. Johnson) in Houston, and the University of Texas Medical Center in Galveston. She has over ten years of teaching experience at the College level. Ms. Reed-Vance has completed all of course work toward a Doctor of Philosophy Degree in Nursing Research. She currently serves as the Principal Investigator of the Baltimore site for the multi-site NICHD Community Child Health Network, investigating the role of Stress and Allostatic Load in poor pregnancy outcomes and child health. She has participated in applied research carried out by staff at Baltimore Healthy Start including research on depression screening; the examination of Chlamydia and Bacterial Vaginosis prevalence among program enrollees; childhood safety among program participants; substance abuse and pregnancy outcomes; and inter-pregnancy intervals, home-based family planning services, and contraceptive use patterns. Ms. Reed-Vance is a member of Sigma Theta Tau Nation Nurses Honor Society and Chi Eta Phi Nursing Sorority. She is a Johnson and Johnson Fellow (2006).
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.